The Impact of COVID-19 on Rare and Ultra-Rare Disease Communities

The Impact of COVID-19 on Rare and Ultra-Rare Disease Communities

Critical Challenges and Opportunities

Even in non-pandemic times, rare and ultra-rare disease communities face staggering challenges as they work ceaselessly for awareness, support and treatment. It’s crucial to examine the impact of COVID-19 on rare diseases, which can help shed light on heightened hurdles as well as new opportunities.

Around the world, healthcare systems have shifted their resources to the fight against coronavirus, magnifying existing orphan disease issues such as patient access, therapy development and supply chains. Rare and ultra-rare disease stakeholders (patients, healthcare experts, patient organizations, payers and pharmaceutical manufacturers) must work collaboratively to push forward new solutions for these challenges.

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